Influencing of Family Management in Families with Thalassemic Children on Health Related Quality of Life and Family Functioning: SEM approach
Keywords:Family management, family functioning, health related quality of life, children with thalassemia, parental perception
Purpose: To predicate the way in which families incorporate the work of managing a child with thalassemia within family life and its outcomes. Methods: A correlational design with a structural equation modeling (SEM) approach was used. A total of 309 parents of children with thalassemia from 4 tertiary care hospitals in Thailand completed our questionnaires. Results: Family life difficulties had a negative influence on the child’s health-related quality of life (HRQOL) (b = -2.23, p < 0.05) and family functioning (b = -0.27, p < 0.05), whereas the child’s daily life (b = 5.06, p < 0.05) and condition management ability (b = -1.86, p < 0.05) had a negative influence on the child’s HRQOL. In the final model, 3 variables including the child’s daily life, condition management ability, and family life difficulty could explain 33 % of variance in the child’s HRQOL (R2 = 0.33). This model showed that only family life difficulty could explain 2 % of variance of family functioning (R2 = 0.02). Conclusions: The study suggests that nurses should design interventions to support families in managing their child’s conditions in order to achieve a good child and family outcomes.
V Tangcharoensathien, W Swasdiworn, P Jongudomsuk, S Srithamrongswat, W Patcharanarumol and T Thammathat-aree. Universal coverage scheme in Thailand: Equity outcomes and future agendas to meet challenges. Available at: http://www.who.int/healthsystems/topics/financing/ healthreport/43ThaiFINAL.pdf, accessed January 2016.
M Thavorncharoensap, K Torcharus, I Nuchprayoon, A Riewpaiboon, K Indaratna and BO Ubol. Factors affecting health-related quality of life in Thai children with thalassemia. BMC Blood Disord. 2010; 10, 1.
K Torcharus and T Pankaew. Health-related quality of life in thalassemia treated with iron chelation. Southeast Asian J. Trop. Med. Public Health 2011; 64, 3-10.
S Prasomsuk, A Jetsrisuparp, T Ratanasiri and A Ratanasiri. Lived experiences of mothers caring for children with thalassemia major in Thailand. J. Spec. Pediatr. Nurs. 2007; 12, 13-23.
EB Fung, Y Xu, F Trachtenberg, I Odame, JL Kwiatkowski, EJ Neufeld, AA Thompson, J Boudreaux, CT Quinn and EP Vichinsky. Inadequate dietary intake in patients with thalassemia. J. Acad. Nutr. Diet 2012; 112, 980-90.
KA Knafl and JA Deatrick. Family management style and the challenge of moving from conceptualization to measurement. J. Pediatr. Oncol. Nurs. 2006; 23, 12-8.
TM Palermo, CR Valrie and CW Karlson. Family and parent influences on pediatric chronic pain: A developmental perspective. Am. Psychol. 2014; 69, 142.
P Surapolchai, W Satayasai, P Sinlapamongkolkul and U Udomsubpayakul. Biopsychosocial predictors of health-related quality of life in children with thalassemia in Thammasat University Hospital. J. Med. Assoc. Thai. 2010; 93, 65-75.
E Storch, M Keeley, L Merlo, M Jacob, C Correia and D Weinstein. Psychosocial functioning in youth with glycogen storage disease type I. J. Pediatr. Psychol. 2008; 33, 728-38.
S Cohen. Social relationships and health. Am. Psychol. 2004; 59, 676.
KA Knafl, BG Darney, AM Gallo and DB Angst. Parental perceptions of the outcome and meaning of normalization. Res. Nurs. Health 2010; 33, 87-98.
H Skinner, P Steinhauer and G Sitarenios. Family Assessment Measure (FAM) and process model of family functioning. J. Fam. Ther. 2000; 22, 190-210.
JW Varni, M Seid and PS Kurtin. PedsQL™ 4.0: Reliability and validity of the Pediatric Quality of Life Inventory™ Version 4.0 Generic Core Scales in healthy and patient populations. Med. Care 2001; 39, 800-12.
RB Kline. Principles and Practice of Structural Equation Modeling: Guilford Publications, 2015.
MR Chernick. Bootstrap Methods:A Guide for Practitioners and Researchers. Vol 619, John Wiley & Sons, 2011.
B Efron and R Tibshirani. Bootstrap methods for standard errors, confidence intervals, and other measures of statistical accuracy. Stat. Sci. 1986; 1, 54-75.
O Duman, S Arayici, C Fettahoglu, N Eryilmaz, S Ozkaynak, A Yesilipek and V Hazar. Neurocognitive function in patients with β-thalassemia major. Pediatr. Int. 2011; 53, 519-23.
A Roth. Vacuum Technology. Elsevier, Amsterdam, Netherlands, 2012.
S Sheth, M Licursi and M Bhatia. Sickle cell disease: Time for a closer look at treatment options? Br. J. Haematol. 2013; 162, 455-64.
P Prakongsai, S Limwattananon and V Tangcharoensathien. The equity impact of the universal coverage policy: Lessons from Thailand. Adv. Health Econ. Health Serv. Res. 2009; 21, 57-81.
Y Zhang, M Wei, H-R Han, Y Zhang and N Shen. Testing the applicability of the family managementstyle framework to Chinese families. West J. Nurs. Res. 2013; 35, 920-42.
M Pinyuchon and LA Gray. Understanding Thai families: A cultural context for therapists using a structural approach. Contemp. Fam. Ther. 1997; 19, 209-28.
P Burnard and W Naiyapatana. Culture and communication in Thai nursing: A report of an ethnographic study. Int. J. Nurs. Stud. 2004; 41, 755-65.
How to Cite
Copyright (c) 2017 Walailak Journal of Science and Technology (WJST)
This work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License.