Perception of Advance Directive in Thai Women with Cancer: A Qualitative Study

Authors

  • Tharin PHENWAN School of Medicine, Walailak University, Nakhon Si Thammarat 80160
  • Patsri SRISUWAN Department of Family Medicine, Phramongkutklao Hospital, Bangkok 10400
  • Tanongson TIENTHAVORN Department of Community and Military Medicine, Phramongkutklao College of Medicine, Bangkok 10400

DOI:

https://doi.org/10.48048/wjst.2019.3642

Keywords:

Advance directive, living will, qualitative research, cancer, palliative care

Abstract

Advance Directive (AD) is a medical agreement to ensure that patients’ autonomy is respected. In Thailand, there has been Health Act Legislation to promote the use of a living will, a form of AD, since 2007. However, there is no assessment of its practicability yet. The objective of this study was to explore perceptions and attitudes to living wills by women who were diagnosed with cancer. We conducted semi-structured interviews using a purposive sampling method. Fifteen patients at the gynaecologic oncology clinic from January 2014 to April 2015 joined the study. Participants were instructed to read the living will document designed by the Thai National Health Security Office (NHSO) and asked about 3 aspects; awareness of and attitude towards living wills, comprehension of the document, and decision-making. Final codes were analysed using investigator and data triangulation methods along with content analysis. All participants were in the early stages of cancer. Five women were diagnosed with breast cancer, 7 with cervical cancer, and 3 with ovarian cancer. None of them had heard of living wills before. Three themes emerged; 1) Participants felt overwhelmingly positive about the idea of making an AD with a living will. 2) The document was too complicated for participants. 3) Past experiences about death and terminal illness played a major role in decision-making regarding AD. In conclusion, larger scale assessment of AD in Thailand is recommended. Living wills may be useful tools for making AD in women with cancer but they need to be simplified.

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References

S Sahm, R Will and G Hommel. Attitudes towards and barriers to writing advance directives amongst cancer patients, healthy controls, and medical staff. J. Med. Ethics 2005; 31, 437-40.

S Sahm, R Will and G Hommel. What are cancer patients' preferences about treatment at the end of life, and who should start talking about it? A comparison with healthy people and medical staff. Support Care Cancer 2005; 13, 206-14.

S Sahm, R Will and G Hommel. Would they follow what has been laid down? Cancer patients' and healthy controls' views on adherence to advance directives compared to medical staff. Med. Health Care Philos. 2005; 8, 297-305.

N Evans, C Bausewein, A Meñaca, EV Andrew, IJ Higginson, R Harding, R Pool and M Gysels. A critical review of advance directives in Germany: Attitudes, use and healthcare professionals' compliance. Patient Educ. Couns. 2012; 87, 277-88.

M Escher, TV Perneger, S Rudaz, P Dayer and A Perrier. Impact of advance directives and a health care proxy on doctors' decisions: A randomized trial. J. Pain Symptom Manag. 2014; 47, 1-11.

CSantonocito, G Ristagno, A Gullo and MH Weil. Do-not-resuscitate order: A view throughout the world. J. Crit. Care 2013; 28, 14-21.

MI Tamayo-Velázquez, P Simón-Lorda, R Villegas-Portero, C Higueras-Callejón, JF García-Gutiérrez, F Martínez-Pecino and IM Barrio-Cantalejo. Interventions to promote the use of advance directives: An overview of systematic reviews. Patient Educ. Couns. 2010; 80, 10-20.

KDP Puente, JL Hidalgo, MJ Herráez, BN Bravo, JO Rodríguez and VG Guillén. Study of the factors influencing the preparation of advance directives. Arch. Gerontol. Geriatr. 2014; 58, 20-4.

RE Rakel and P Storey. Care of dying Patient. In: RE Rakel. Textbook of Family Practice. 7th ed. Saunders Elsvier, Philadelphia, 2007, p. 107-126.

Australian Government. Costs of Death and Health Expenditure. Available at: http://www.pc.gov.au/inquiries/completed/ageing/technicalpapers/technicalpaper13.pdf, accessed January 2017.

J Stjernsward, KM Foley and FD Ferris. Integrating palliative care into national policies. J. Pain Symptom Manag. 2007; 33, 514-20.

J Stjernsward, KM Foley and FD Ferris. The public health strategy for palliative care. J. Pain Symptom Manag. 2007; 33, 486-93.

ML Rurup, BD Onwuteaka-Philipsen, AVD Heide, GVD Wal and DJ Deeg. Frequency and determinants of advance directives concerning end-of-life care in the Netherlands. Soc. Sci. Med. 2006; 62, 1552-63.

C Sinclair, KA Auret, SF Evans, F Williamson, S Dormer, A Wilkinson, K Greeve, A Koay, D Price and F Brims. Advance care planning uptake among patients with severe lung disease: A randomised patient preference trial of a nurse-led, facilitated advance care planning intervention. BMJ Open 2017; 7, e013415.

S Sittisombut, C Maxwell, EJ Love and C Sitthi-Amorn. Physicians' attitudes and practices regarding advanced end-of-life care planning for terminally ill patients at Chiang Mai University Hospital, Thailand. Nurs. Health Sci. 2009, 11, 23-8.

S Sittisombut, EJ Love and C Sitthi-Amorn. Attitudes toward advance directives and the impact of prognostic information on the preference for cardiopulmonary resuscitation in medical inpatients in Chiang Mai University Hospital, Thailand. Nurs. Health Sci. 2005; 7, 243-50.

S Sittisombut, EJ Love and C Sitthi-Amorn. Cardiopulmonary resuscitation performed in patients with terminal illness in Chiang Mai University Hospital, Thailand. Int. J. Epidemiol. 2001; 30, 896-8.

S Sittisombut, C Maxwell, EJ Love and C Sitthi-Amorn. Effectiveness of advance directives for the care of terminally ill patients in Chiang Mai University Hospital, Thailand. Nurs. Health Sci. 2008; 10, 37-42.

S Sittisombut and S Inthong. Surrogate decision-maker for end-of-life care in terminally ill patients at Chiang Mai University Hospital, Thailand. Int. J. Nurs. Pract. 2009; 15, 119-25.

A Lovell and P Yates. Advance Care Planning in palliative care: A systematic literature review of the contextual factors influencing its uptake 2008-2012. Palliat. Med. 2014; 28, 1026-35.

L Meeuwesen, AVD Brink-Muinen and G Hofstede. Can dimensions of national culture predict cross-national differences in medical communication? Patient Educ. Couns. 2009; 75, 58-66.

U Milintangkul. National Policy on Palliative Care in Thailand. Available at: http://en.nationalhealth.or.th/sites/default/files/NationalPolicyonPCare2015_09_17.pdf, accessed December 2016.

About Five Wishes. Available at: https://www.agingwithdignity.org/five-wishes/about-five-wishes, accessed December 2016.

Baojai. Available at: http://www.budnet.org/sunset/baojai, accessed December 2016.

N Sowattanangoon, N Kotchabhakdi and KJ Petrie. The influence of Thai culture on diabetes perceptions and management. Diabetes Res. Clin. Pract. 2009; 84, 245-51.

T Walter. Historical and cultural variants on the good death. BMJ 2003; 327, 218-20.

K Almack, K Cox, N Moghaddam, K Pollock and J Seymour. After you: Conversations between patients and healthcare professionals in planning for end of life care. BMC Palliat. Care 2012; 11, 15.

JJ Rhee, NA Zwar and LA Kemp. Why are advance care planning decisions not implemented? Insights from interviews with Australian general practitioners. J. Palliat. Med. 2013; 16, 1197-204.

JW Mack, A Cronin, NL Keating, N Taback, HA Huskamp, JL Malin, CC Earle and JC Weeks. Associations between end-of-life discussion characteristics and care received near death: A prospective cohort study. J. Clin. Oncol. 2012; 30, 4387-95.

JW Mack, JC Weeks, AA Wright, SD Block and HG Prigerson. End-of-life discussions, goal attainment, and distress at the end of life: Predictors and outcomes of receipt of care consistent with preferences. J. Clin. Oncol. 2010; 28, 1203-8.

AJ Brown, MJ Shen, D Urbauer, J Taylor, PA Parker, C Carmack, L Prescott, E Kolawole, C Rosemore, C Sun, L Ramondetta and DC Bodurka. Room for improvement: An examination of advance care planning documentation among gynecologic oncology patients. Gynecol. Oncol. 2016; 142, 525-30.

GJ Alano, R Pekmezaris, JY Tai, MJ Hussain, J Jeune, B Louis, G El-Kass, MS Ashraf, R Reddy, M Lesser and GP Wolf-Klein. Factors influencing older adults to complete advance directives. Palliat. Support Care 2010; 8, 267-75.

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Published

2017-11-09

How to Cite

PHENWAN, T., SRISUWAN, P., & TIENTHAVORN, T. (2017). Perception of Advance Directive in Thai Women with Cancer: A Qualitative Study. Walailak Journal of Science and Technology (WJST), 16(8), 601–610. https://doi.org/10.48048/wjst.2019.3642